Description
After fifteen months of waiting and wondering, Ana Nolan was informed that her daughter Lisa had a rare nerve disorder with progressive muscle wasting, starting in her hands and feet and gradually working its way up her body until it reached the vital organs. There was no cure. Lisa would gradually waste away. 'It was a mother’s worst nightmare. My child would gradually waste away and there was nothing I could do about it. Staying sane in a special needs world was something I had to learn. Meeting God in a hospital toilet provided the strength to raise my family, conquer mountains, and survive the valley of bereavement.' Living with Lisa imparts hope into the heart of parents and a valuable resource for people who work with special needs families - including medical professionals, therapists, teachers, and carers.